Thursday, July 16, 2009

No Doubt Meets with Chicago and Indianapolis Teens

No Doubt poses with teens battling cancer.

No Doubt hosted two "Star's Night Out" events in two nights in Indianapolis and Chicago on July 10-11. Teenagers from Peyton Manning Children's Hospital at St. Vincent's in Indianapolis were treated to a meet and greet, autographs and pictures with the band as well as special seating at the show at the Verizon Wireless Music Theater. The following night, patients from Children's Memorial Hospital in Chicago got the same treatment at the First Midwest Bank Amphitheater. No Doubt also extended their generosity by donating an autographed CD and poster to Rock Against Cancer's silent auction at the First Annual Strike Out Childhood Cancer Night with the Durham Bulls on Aug. 8.


Beyonce Hosts Triangle Area Teens at "Stars Night Out" Event in Greensboro


Beyonce hugging a young patient


Teenage patients from N.C. Children's Hospital and Duke Children's attended a "Star's Night Out" event with Beyonce Knowles at her Greensboro concert on June 27, 2009. Ten teens plus their friends and family received special seating during the concert. They later had the chance to talk with the star and have personal photographs taken with her. The patients enjoyed having the opportunity to meet with one of the industry's biggest stars!

Beyonce poses with a fan and her mother


Wednesday, July 1, 2009

More on Leo's Wonderful Night

Wonder wows crowd at Amphitheater in Alpharetta



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Stevie Wonder performs with his daughter and a young, terminally ill cancer patient named Leo. Clark Savage/Clayton Cameracraft. (click for larger version)
June 25, 2009
ALPHARETTA - Stevie Wonder had no shortage of diehard fans filling the Verizon Amphitheater June 24.

Before the gates opened, the crowd had already started chanting, "Stevie, Stevie, Stevie."

Debra and Michael Vester of Alpharetta are fans of both Wonder and the Amphitheater. They have seen nearly every recent concert and plan to keep coming back for their "date night."

"We've never seen him live," she said, "but I grew up listening to him."

Debra remembered seeing his album cover everywhere when she was younger and she said she wasn't alone.

"There were some other ladies here that drove up from Savannah," she said. "Having the Amphitheater here is a huge convenience that it is right here. It's a fantastic place for the city."

Michael said everyone at work was "jealous" he was coming to see Wonder perform.

Lauren Dalrymple of Vinnings had her own sentimental reasons for coming Wonder's concert.

"I danced with my dad at my wedding in April to 'Isn't She Lovely,'" she said with a smile.

At 9:15 p.m., the lights went out and the crowd cheered. Wonder stepped out onto stage accompanied by his daughter, Aisha Morris, who was the inspiration for the hit single, "Isn't She Lovely."

Since the concert was scheduled to start at 8 p.m., Wonder acknowledged they were late in stepping out on stage. He said he had just met Leo, an 18-year-old terminally ill cancer patient, who accompanied Wonder for the entirety of the performance.

"Sure we are late, but it was for an amazing reason," he said. "This is a very special night. All of us are coming together for a good reason. When we get together as one people and in the spirit of God, wonderful things can happen."

Leo's family said the music had been an inspiration, Wonder said.

"When you leave tonight," he said, "I want you to say a special prayer for him and all of those dealing with an illness. The God I serve says impossible is unacceptable."

Following a rendition of "Sugar Pie Honey Bunch," the crowd had erupted into cheers and fans were dancing across the covered area as well as the lawn.

"We ain't through, yet," Wonder said with a grin. "We're just getting started."

Wonder had numerous sing along moments. Once, when the men in the audience were delivering what he believed to be a weak response, he tried to ignite some excitement with the crowd.

"Let the blind lead the confused," he joked, which was followed by a round of applause.

Wonder played without intermission for more than two hours. His daughter, Aisha, performed while her father played on the piano.

Wonder also pulled one man out of the crowd to sing with him who yelled, "I can't believe I'm on the stage with Stevie Wonder."

By the end of the performance, the entire Amphitheater crowd was on its feet.

"Thank you for helping me celebrate life and joy to Leo tonight," Wonder said. "If you really want to do something, use your heart to love somebody. Until we meet again, I will send you my love until my last breath."

Saturday, June 27, 2009

RAC Visits D.C.


On June 22 and 23, Ashley (PR&Marketing Director for RAC), Lisa White Ph.D (Founder of RAC) and I (Jordan the intern) went to Washington D.C. to lobby Congress to support pediatric cancer research funding. Last year with the passage f the Caroline Pryce Walker Conquer Childhood Cancer Act, Congress said they would support up to $30million in pediatric cancer research for the next five years. Lisa, Ashley and I along with Tony Covington, a CureSearch employee (pictured top with Jordan and Ashley), and the Sheehans, a family who recently suffered the loss of their six-year-old son to leukemia, made up the North Carolina team. The seven of us spent Monday training to be effective lobbyists. Dr. George Reaman, head of the Children’s Oncology Group, shared some very hopeful updates in pediatric cancer treatments with the group of about 300. We also got to hear from former Congresswoman Deborah Pryce (pictured bottom with Lisa and Ashley) who sponsored the Conquer Childhood Cancer Act after her 9-year-old daughter, Caroline, for whom the bill was named, died from cancer.




Tuesday began with a rally on Capitol Hill where several congressmen and women spoke. The day was then spent visiting several North Carolina congressmen’s offices as well as Senator Kay Hagan’s. The day was at times emotional and overall tiring but we were met with support and positive reception by most of the offices. Our visit was part of CureSearch’s annual Reach the Day event, an event that brings together families, caregivers and researchers in the hopes that we will one day reach the day where all pediatric cancers will have a 100% cure rate. Making sure our government supports pediatric cancer research is one step in the right direction to reaching that day.



Friday, June 26, 2009

Pediatric Cancer Caucus formed by Congressman Sestak

This announcement was made on June 23 at CureSearch's Reach the Day event I attended with Ashley and Jordan. The NC Team had an excellent day on Capitol Hill talking to Senators and Congressman about the need to fully fund the Conquer Childhood Cancer Act signed into law last July. This caucus will allow for more streamlined information to Congressman members about childhood cancer research and awareness issues.

Pediatric Cancer Caucus Announced

Congressman Sestak Announces Pediatric Cancer Caucus Opens childhood cancer rally and will introduce House Resolution for September Awareness Day

Washington, D.C. - Among hundreds of children, parents, nurses and concerned citizens, Congressman Joe Sestak (PA-07) opened CureSearch's "Rally to Reach the Day." The Congressman announced the establishment of a new House Pediatric Cancer Caucus and, as someone who shared the experiences of many attending the event, expressed his hopes for the future of pediatric cancer research and treatment.

"Tragically, cancer is the leading cause of death by disease in children and, although long term survival rates are fairly high, three out of five children suffer from long tem side affects," said the Congressman.

As the parent of a child diagnosed with cancer, the Congressman spoke about the heart-wrenching, emotional experiences that every one of the more than 14,000 families with a child with cancer endures. He also noted that each day, 46 children-more than two classrooms of kids-will be diagnosed with cancer. His daughter's experience and his concern about healthcare in general were, in fact, the main catalysts for his decision to run for Congress.

"I firmly believe that it is only through the collaboration of the government, private organizations like CureSerach, doctors, and the families affected by this devastating illness that we can come closer to finding a cure," said the Congressman. "The establishment of the House Pediatric Cancer Caucus is a significant step forward that will give voices to thousands of sick children and represent the struggles of every family battling the disease."

The mission of the Pediatric Cancer Caucus, which Congressman Sestak will co-chair, is to serve as a clearinghouse for information on pediatric cancer and a bipartisan forum to aid members of Congress in working together to address pediatric cancer. Its goals include increasing funding for pediatric cancer research, encouraging the collaboration between the public sector and private research organizations and supporting the training of skilled pediatric cancer specialists. As the first initiative of the caucus, the Congressman is introducing a House resolution commemorating Pediatric Cancer Awareness Day in September.

CureSearch is a National Childhood Cancer Foundation which works to raise private funds for pediatric cancer research for the Children's Oncology Group, the world's largest cooperative cancer research organization. Within the network of the organizations are more than 5,000 physicians, nurses and scientists. The "Rally to Reach the Day" is an event that draws Congressional speakers to help raise awareness about pediatric cancer.

The Congressman, who has been devoted to cancer patients since he was elected, was recently honored with an award from the Linda Creed Breast Cancer Foundation. The Actions, Commitment and Efforts (ACE) Award is the first of its kind and was given to the Congressman as recognition of his ongoing support for breast cancer patients.

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Thursday, June 25, 2009

A "Wonder"ful Night for Leo

I just wanted to share this first hand account of Leo's amazing night with Stevie Wonder in Atlanta last night. Leo is an 18 year old battling a rare form of cancer, Rhabdomyosarcoma.

Thursday, June 25, 2009

Overjoyed


My wife works at Children's Healthcare of Atlanta on the AFLAC Cancer Center. One of her patients is Leo, an 18-year-old kid with terminal cancer, and his dad told her early on that Leo is a huge Stevie Wonder fan.

Beth (the wife) works with Rock Against Cancer, and through their local volunteer and the Atlanta NBC station, she got in touch with Stevie's management ahead of the concert he played here last night. Leo and his family got to meet with Stevie before the show, and not only did Stevie walk out and dedicate the show to Leo, he brought the kid out onstage, sat him down on the piano bench next to him, and kept him there the entire show. We were up on the lawn (the Ampitheater at Encore Park in Alpharetta), and you could literally see the grin on the kid's face from way back there. They also had dinner together after the show.

After the concert Leo's family invited Beth to the after-show party backstage (I tagged along shamelessly), where Stevie played keyboards and harmonica for a good hour, but spent most of his time hanging around with Leo, who by then was walking about six feet off the ground (and on an entirely personal note, watching Stevie Wonder play "Overjoyed" to a small room from a yard away pretty much pegs the cool meter).

There aren't ten big stars in the world who'd do all that. Hell, there might not even be two.

So, to reiterate: Stevie Wonder = Good Guy.

There should be a story about it on the Atlanta NBC affiliate ("11Alive") either tonight or tomorrow.

Thursday, June 18, 2009

Thank You!

Rock Against Cancer wants to send a huge thank you out to the following organizations for their donations to the 1st Annual Strike Out Childhood Cancer Night on 8/8/2009:

-Walgreen's is donating bottled water, soft drinks and ice for children with cancer and their families who come out to the game. 
-Cleveland Indians for donating an autographed Ryan Garko photograph. 
-Charlotte Bobcats for donating an autographed basketball and fan pack.  
-Divi Resorts for donating a 7 day, 6 night stay in St. Marteen.   
-Lisa White & Family for donating a week long stay in Sunset Beach, NC.
-Greg Voss & Family for donating a week long stay at Lake Cumberland, KY.  
-Matchbox 20 donated an autographed concert program and publicity photograph. 
-Hilton Garden Inn for donating a 1 night weekend stay with complimentary breakfast. 
-Princeton Review for donating a Graduate Prep class (for LSAT, GMAT or GRE) worth $1,400!

These donations will all help children battling cancer! If you would like to make a donation, please email Ashley Voss at ashley@rockagainstcancer.org.